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H.E Dr. Maryam Matar

Founder and Chairperson at UAE Genetic Diseases Association

Profile

A leading healthcare influencer and a global speaker, Her Excellency Dr Maryam Matar had pioneered study of genes and advocates public education and awareness of genetic disorders across the ME region. She is single handedly responsible for putting UAE on the global map of genetic research and innovation. As a pioneer genetic scientist, she played a lead role in bringing new legislations for pre-marital screening, preventive genetic testing and relevant mandatory legislations at the government level in the UAE.

In 2004 she had conceptualized a national body on genetic disorder, awareness and prevention and UAE Genetic Diseases Association (UAEGDA) and Sheikh Zayed Research Centre were founded as a dedication to the memory of His Highness Sheikh Zayed bin Sultan Al Nahyan, founding father of the U.A.E and under the patronage of His Highness Sheikh Nahyan Bin Mubarak Al- Nahyan, Cabinet Member and Minister of State for Tolerance of UAE and President, UAE Genetic Diseases Association. She is currently serving on the panel of Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease. The Global Commission will develop an actionable roadmap to help the rare disease field to shorten the multi-year diagnostic journey, considered a key to a longer, healthier life.

Agenda Sessions

  • Cost Effectiveness of Prevention Programs of Common Genetic Disorders (Success Stories 2004-2018)

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